Tuesday 23 October 2007

Half Baked - almost !!

Well, that's the first fortnight almost over and so far it's not been so bad.

It's a little like going back to work. The same journey every day to the same institution. Seeing the same people in the same rooms and going through the same routines. I've just swapped one timetable for another. Quite a lot of time is spent sitting around waiting to be called - rather like waiting for an appointment with a headteacher. At least I don't have to keep this up for another 35 years!

Finally, when my turn comes, when the machine works, when the bloods have been taken and reviews completed, I'll go off to be zapped. The Dalek machine is located in a room decorated with lasers and with walls of double thickness that protect the whole world from millions of volts of x-rays, apart from me. The machine looks just like something that would be found in in an evil clone of the Tardis. It is solid and thick and heavy and looks like an anonymous container for extremely powerful magic. I have to lie on a bed that moves up and down, back and forth and from side to side. Then there is the zapping bit which rotates itself and then bits rotate within the rotations. All together the whole contraption seems to move in about six dimensions at one time.
Once I'm lying down with my head on the correct rest and my legs elevated, the plastic mask is clamped over my face. My spine is straightened and then two Dalek slaves come and mutter all sorts of mystical incantations like 'lateral splice' and ' anterior exit' and 'entry dose' take out mysterious . Whilst they are doing this they use mysterious shards of plastic to reflect and block out laser rays checking that the are focused and directed in the right directions. The lights go off and on and off and on or the machine loops and the bed swings until, after movements so slight that they hardly seem to matter, they pronounced their handiwork satisfactory and leave the room. Meanwhile l lie, fixed to the torture table by my face. Suddenly the machine starts chanting, "Exterminate, exterminate, exterminate, exterminate, exter, exter, exter, exter" until, after about 10 seconds all falls silent again. Silently the Dalek slaves creep back into the room and all the machinery swings and rotates and realigns until they are ready to exterminate again. They shoot me from four directions all together, about thirty seconds of zapping all told ... and that's it until the next day. All that travelling and all that waiting for a thirty second zap.

I can't say I haven't been prepared for the results. Even a notice on the receptionist's desk advertises anti-nausea drops. The 'Peg' ... my pierced stomach feeding tube, was put in place to be used when I couldn't eat because the therapy might make my mouth and throat too sore to eat and swallow. I met the Dalek who told me how it would effect my face and mouth. The mask-makers told me how bad it could get, the review nurse, the dietician and even the radiographers all give gentle warnings and ask every day how I am feeling. I get a very strong impression that everyone expects it to be pretty horrid before it finishes. Well sod that for a bunch of bananas - I'm quite determined that it ain't going to be that bad.

And so far so good. There are effects but they are more inconvenient and uncomfortable than painful. I am still eating, drinking and swallowing. My skin has started to redden a bit but just today one of the Dalek slaves commented that my skin was holding up well - there's some hope there then. In general the most pronounced effect is that things are a little more swollen and consequently a little more stiff than they were. I can feel a tightness on the left side of my throat when I swallow. My stiffer neck means that turning my head to the right is a bit more difficult which makes it difficult to look over my shoulder when driving. The more sensitive parts - lips, tongue and cheek, feel a bit 'fizzy' a lot of the time and especially just after treatment.

By next Tuesday the treatment will be half over. I was told that the first two weeks would be ok and that the effects would only become noticeable towards the end of this time. Still, with two weeks gone there's only another three to go so the end is in sight.

Well, that's all for now. Another trip to see the Dalek tomorrow and then I get a weekend break. I wonder what exciting things could be in store.

4 comments:

Anonymous said...

Hi Ron,

you're doing really well and thank you so much for giving us regular news. I don't want to hassle you with phone calls but you know where I am if you fancy a chat. I remember all the driving and waiting and fuss for just a few seconds treatment. Oh and the parking! That was really fun too.
You're already half way through and as long as keep being as positive, you'll be fine. Like you, I was told to expect all kind of horrible things later in the treatment but I got away with a lot. So, there's no reason why you shouldn't be lucky too.
Take good care. We 're all thinking of you and willing you well. Big hug and to Elaine as well.
Gisele

Anonymous said...

Good to hear that you are resisting any bad feeling toward the daleks and of course refusing to be in pain. Any body would think that you were stubborn Ron ?!? Good luck with the rest of the treatment.

Danny

Anonymous said...

Hi Ron,
Glad that the Daleks haven't dented the indominatable Shavreen spirit! Will talk to you soon and see whether you're still managing to eat bananas - or whatever you were planning to do with them!
Love to you both, Lee and Shirley

Anonymous said...

Hi Ron

How brave you are...thinking of you lots xxx

Sarah N